Training
Building Relationships with the Broader Medical Community
Watch this video for disability advocacy organizations to learn how to build relationships with the broader medical community on national, state, and local levels.
Training
Let’s go on a treasure hunt: Uncover your state’s best-kept secrets for medical outreach
Watch this video to find state-level partners who can help local disability advocacy organizations engage in medical outreach. Funding, Collaboration, Advertisement, Training, and Support UCEDD/LEND programs: https://www.aucd.org/template/index.cfm Protection and Advocacy Organizations: https://acl.gov/programs/find-your-pa-agency DD Council: https://nacdd.org/councils/ Parent Center: Parent to Parent and Read more…
Training
Setting Medical Outreach Goals for the New Year
At our last Medical Outreach meeting for local Down syndrome organizations, we discussed how you can grow medical outreach programs by starting the new year with 3-5 medical outreach goals and then evaluating your progress at the 6 months mark Read more…
Publications
Recommendations to Improve the Patient Experience and Avoid Bias When Prenatal Screening/Testing
We are excited to share with you our new manuscript (“Recommendations to improve the patient experience and avoid bias when prenatal screening/testing”) in Disability and Health Journal. Our multidisciplinary team of advisors for the Center for Dignity in Healthcare for People with Disabilities worked for Read more…
Resources
Standards for Down syndrome Organization Medical Outreach Pages
For Health Professionals Supporting New and Expectant Parents: For Health Professionals Supporting Patients Across the Lifespan: Other Information to Share:
Training
Seeking grant funding for medical outreach
Watch our webinar about strategies that local Down syndrome organizations can use to apply for grants to fund medical outreach efforts: Finding grants. Local Mission specific Relationships with funders Check out funders and other projects funded Federal: Get partners with Read more…
Events
Prenatal Disability Education Summit
On May 13, 2022, the National Center for Prenatal and Postnatal Resources, housed at the UK Human Development Institute hosted the Prenatal Disability Education Summit. This event was sponsored by the Joseph P. Kennedy, Jr. Foundation(JPKF) and brought together national medical, advocacy, bioethics, industry, Read more…
Resources
National Down Syndrome Adoption Network Overview
Listen to Stephanie Thompson from the National Down Syndrome Adoption Network provide an overview of their work. NDSAN has also created a booklet for clinicians to give to families who have a prenatal diagnosis and who are considering not parenting Read more…
Training
Creating a Medical Outreach Plan
Learn how to create your own customized medical outreach plan based on the plans we developed through our grant-funded medical outreach team, including 12 local Down syndrome organizations of varying sizes and demographics nationwide. Access the video demonstration here: You Read more…
Training
How to Support Families in Another Language
Burmese Example Check understandingdownsyndrome.org and click on globe. All resources translated by a American Translation Association certified translators and include links to associations in native countries. Find out which countries speak the language. Example: Bangladesh and Myanmar (formerly Burma) Visit Read more…