Watch the video from our most recent medical outreach call about the results from our community conversations with Black and Hispanic parents of children with Down syndrome and their specific suggestions for how advocacy organizations can better meet their needs. You can also learn more about our Patient-Centered Outcomes Research Institute (PCORI) Project to improve the dissemination of research to Black and Hispanic new and expectant parents of children with Down syndrome, and read the white papers that give specific ideas for advocacy organizations and medical providers!
Supporting Children With Down Syndrome and Another Diagnosis
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on supporting children with Down syndrome who also have another genetic condition. Connecting with a Genetics Provider One of the first and most important steps is Read more…