Lettercase

  • Home
  • About
    • History
    • Endorsements
    • Partners: Genetic Conditions Consensus Group
    • Partners: Down Syndrome Collaborative
  • Resources
    • Resource Summary
  • News
  • Training
    • Training for Medical Professionals
    • Training for Advocacy Organizations
    • Trained Medical Professionals
  • Outreach
    • State Laws
    • Patient Resource Summary for Medical Organizations and Testing Labs
    • Research
    • Presentations
    • Prenatal Disability Education Summit
      • Action Plan and Progress
      • Summit Report
    • PCORI
  • Contact

News

Photo from presentation about GSF with a White women with brown hair in the top right.
Training

Lettercase New Home at the Genetic Support Foundation

For more than a decade, Lettercase has been a trusted resource for expectant and new parents, as well as healthcare providers, delivering accurate, accessible, and evidence-based materials about genetic conditions. Now, as part of GSF, our mission is strengthened with the support of Read more…

By Stephanie Meredith, 7 monthsOctober 7, 2024 ago
Maryam Ijaz presenting at NSGC conference.
Publications

Journal of Genetic Counseling Article

One of our genetic counseling student colleagues at Wayne State University, Maryam Ijaz, and her program director, Angela Trepanier, performed an analysis of the data we collected from patients about their genetic counseling experiences, as a subset of the data Read more…

By Stephanie Meredith, 9 monthsAugust 2, 2024 ago
Meredith family
Resources

5 Things I Wish the Doctors Had Told Me When My Son was Diagnosed with Down syndrome

Storytelling session at the Genetic Support Foundation event in 2018 discussing the top 5 things Stephanie Meredith wishes doctors or genetic counselors would have told her when her son, Andy, was diagnosed with Down syndrome back in the year 2000.

By Stephanie Meredith, 9 monthsAugust 2, 2024 ago
Screenshot of powerpoint presentation
Training

Be the Early Bird: Early Intervention with Roxane Romanick, LCSW

Learn how you can build relationships with medical providers, engage in medical outreach, and meet more new and expectant parents by collaborating with Early Intervention specialists and programs. Featuring Roxane Romanick, LCSW whose experience includes: Experience includes direct parent support, Read more…

By Stephanie Meredith, 1 yearApril 11, 2024 ago
Black girl with Down syndrome showing her mother an iPad.
Training

Be included in cultural competency efforts with medical systems and schools 

Be included in cultural competency efforts with medical systems, schools, and Departments of Public Health: How do these entities describe Down syndrome—if at all? Are people with disabilities being included in educational efforts?  What are the values of the organizations/entities? Read more…

By Stephanie Meredith, 1 yearFebruary 1, 2024 ago
Girl with Down syndrome reading a book.
Publications

Improving Support for Black and Hispanic Parents of Children with Down Syndrome

Watch the video from our most recent medical outreach call about the results from our community conversations with Black and Hispanic parents of children with Down syndrome and their specific suggestions for how advocacy organizations can better meet their needs. Read more…

By Stephanie Meredith, 1 yearDecember 5, 2023 ago
Photo of medical outreach web page
Training

Attention Advocacy Organizations: 5 Minute Tutorial on How to Use Our Medical Outreach Resources

By Stephanie Meredith, 2 yearsNovember 2, 2023 ago
Pregnant young white mom with brown hair sitting on bed and talking to female doctor on laptop.
Publications

Prenatal Disability Bias Study

Our team at UK just published a study on the experiences of patients learning about a prenatal diagnosis of Down syndrome and the information provided to them when receiving prenatal screening results. We also examined how implicit and explicit bias impacted Read more…

By Stephanie Meredith, 2 yearsOctober 5, 2023 ago
Two women smiling, and one is a doctor and one is a professionally dressed woman visiting the office.
Training

Operation House Call

Overview of Operation Housecall: A Collaboration between the Stanford MS Program in Human Genetics and Genetic Counseling and the Silicon Valley Down Syndrome Network (SVDSN).   What is Operation Housecall?“Operation Housecall is a partnership SVDSN has with Stanford University’s Genetic Counseling Read more…

By Stephanie Meredith, 2 yearsOctober 2, 2023 ago
Conference room with people have a conversation.
Training

Customizing Medical Outreach for Different Demographics

Watch this video to learn how disability advocacy organizations can customize their medical outreach program for the unique demographics they serve: rural and small areas, medium-sized areas and suburbs, big cities, and state-based organizations. Rural and small areas: Medium-sized areas Read more…

By Stephanie Meredith, 2 yearsApril 19, 2023 ago

Posts pagination

Previous 1 2 3 … 5 Next
About This Site

Find resources and training to help expectant parents and medical professionals get the support they need following a prenatal or postnatal diagnosis.

Organization

The Lettercase National Center for Prenatal and Postnatal Resources is part of the Genetic Support Foundation.

Girl with Down syndrome reading a book.
Categories
  • Events
  • Publications
  • Resources
  • Spotlights
  • Training
  • Contact
  • Outreach
  • Training for Advocacy Organizations
  • Training for Medical Professionals
  • Trained Medical Professionals
  • State Laws
  • Resource Summary
  • Patient Resource Summary for Medical Organizations and Testing Labs
  • Delivering a Prenatal Diagnosis
  • News
Hestia | Developed by ThemeIsle