During this month’s Down Syndrome Collaborative meeting, Stephanie Smith Lee (Policy & Advocacy Co-Director of the National Down Syndrome Congress) presented on disability rights and supporting new and expecting parents.
Stephanie Smith Lee discusses the progress and challenges in disability advocacy, from the the signing of the ADA in 1990, to the formation of the United Coalition for Down syndrome, to the current Trump administration. We now face deep partisan divide, drastic federal changes without stakeholder input, rapid deregulation, and threats to the Department of Education, Medicaid, and the ACA.
How can you help us fight back?
- Tell your story
- Advocate at the state level, which is more important now than ever
- Encourage colleges, universities, and community colleges to apply for TPSID grants
- Make your voice heard by contacting your Members of Congress, building relationships with legislators and budget staff, testifying at hearings, and submitting public comments during budget season
- Connect with the Association of People Supporting Employment First (APSE) and DD Councils in your state
- Become a member of the National Down Syndrome Advocacy Coalition (NDAC) to join grassroots advocacy efforts
