Alliance
Protected: Alliance Meeting | January 2026
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Events
Medical Outreach Grants
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on the basics of medical outreach grants, including how to find grants, create budgets, and get letters of support! STEP 1: Finding Grants Start local whenever possible and don’t be afraid to reach out to the grantor before you apply. Sharing Read more…
Events
2026 Medical Outreach Meeting Schedule
Thank you for a wonderful 2025! We look forward to another year of developing and translating resources, conducting and sharing new research, and training providers and advocacy leaders. We are also excited to see and learn from the new and ongoing accomplishments of our Medical Outreach Meeting participants in 2026! Read more…
Events
Holiday Medical Outreach Ideas
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented ideas for making connections with healthcare providers during the holidays! Holiday Outreach Ideas We curated a fantastic list of ideas to connect with medical providers during the holidays: Holiday Cards Holiday Packet Mail or drop off a small packet with: Read more…
Events
Reaching Different Medical Providers
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to reach different medical providers. Resources for Provider Outreach The following are great resources to help you find providers involved in Down syndrome care: Obstetricians and Gynecologists American College of Obstetricians and Gynecologists (ACOG): ACOG is a large professional association Read more…
Events
Reaching Medical Providers Who Care for Patients with Down Syndrome Across the Lifespan
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to reach out to medical providers who are caring for patients with Down syndrome across the lifespan. Transition Handbook Dr. Meredith discussed updates to the Down Syndrome Transition Handbook, which she recently helped Jo Ann Simons (CEO of Read more…
Events
Disability Rights and Supporting New and Expecting Parents
During this month’s Down Syndrome Collaborative meeting, Stephanie Smith Lee (Policy & Advocacy Co-Director of the National Down Syndrome Congress) presented on disability rights and supporting new and expecting parents. Stephanie Smith Lee discusses the progress and challenges in disability advocacy, from the the signing of the ADA in 1990, Read more…
Events
How to Create and Share Electronic Release Forms
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to create and share electronic release forms. Creating a Release Form Release forms help providers share patient information with advocacy organizations, and give advocacy organizations a clear pathway to communicate with families. Having both print and electronic release Read more…
Events
How to Support Patients with Financial Need
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to support families with financial need and how this benefits your medical outreach program. Social Determinants of Health Finances fall under the umbrella of social determinants of health (SDOH) – non-medical factors that affect health outcomes and can Read more…
Events
How to Form a Medical Advisory Team
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to form and collaborate with a medical advisory team. Watch a recording of this meeting below and read on for a summary and helpful links! How to Find Medical Advisory Team Members Professionals that may be helpful to Read more…