During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to reach different medical providers. Resources for Provider Outreach The following are great resources to help you find providers involved in Down syndrome care: Obstetricians and Gynecologists American College of Obstetricians and Gynecologists (ACOG): ACOG is a large professional association Read more…
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to reach out to medical providers who are caring for patients with Down syndrome across the lifespan. Transition Handbook Dr. Meredith discussed updates to the Down Syndrome Transition Handbook, which she recently helped Jo Ann Simons (CEO of Read more…
During this month’s Down Syndrome Collaborative meeting, Stephanie Smith Lee (Policy & Advocacy Co-Director of the National Down Syndrome Congress) presented on disability rights and supporting new and expecting parents. Stephanie Smith Lee discusses the progress and challenges in disability advocacy, from the the signing of the ADA in 1990, Read more…
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to create and share electronic release forms. Creating a Release Form Release forms help providers share patient information with advocacy organizations, and give advocacy organizations a clear pathway to communicate with families. Having both print and electronic release Read more…
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to support families with financial need and how this benefits your medical outreach program. Social Determinants of Health Finances fall under the umbrella of social determinants of health (SDOH) – non-medical factors that affect health outcomes and can Read more…
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to form and collaborate with a medical advisory team. Watch a recording of this meeting below and read on for a summary and helpful links! How to Find Medical Advisory Team Members Professionals that may be helpful to Read more…
The Down Syndrome Collaborative supports new and expectant parents from pregnancy through age 3 with key partners in the Down syndrome community. In this month’s Down Syndrome Collaborative meeting, Kate and Lily Meredith present on their experience growing up with their older brother, Andy, who has Down syndrome. The Sibling Read more…
In this week’s Medical Outreach Meeting, we discussed how to communicate with different cultural groups in your area. Watch a recording of this meeting below and read on to access helpful links! New Languages added to Understanding a Down Syndrome Diagnosis In today’s meeting, we announced that Understanding a Down Read more…
On May 13, 2022, the National Center for Prenatal and Postnatal Resources, housed at the UK Human Development Institute hosted the Prenatal Disability Education Summit. This event was sponsored by the Joseph P. Kennedy, Jr. Foundation(JPKF) and brought together national medical, advocacy, bioethics, industry, and policy leaders to collaboratively identify current challenges and potential Read more…
We’re pleased to share that we’ll be presenting and exhibiting at the 2022 Down Syndrome Affiliates in Action Conference in Las Vegas February 17-20. We hope you’ll join us at our session and visit our booth to check out what’s new and enter our prize drawings. Check out our sessions at the Down Read more…