October 29-30, we will be speaking about the impact of non-invasive prenatal screening on patient advocacy groups and the challenges of navigating ethically ambiguous territory, as well as some possible solutions for creating an education infrastructure as prenatal screening expands.
During this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to reach out to medical providers who are caring for patients with Down syndrome across the lifespan. Transition Handbook Dr. Meredith discussed updates Read more…
During this month’s Down Syndrome Collaborative meeting, Stephanie Smith Lee (Policy & Advocacy Co-Director of the National Down Syndrome Congress) presented on disability rights and supporting new and expecting parents. Stephanie Smith Lee discusses the Read more…
For this month’s Medical Outreach Meeting, Dr. Stephanie Meredith presented on how to create and share electronic release forms. Creating a Release Form Release forms help providers share patient information with advocacy organizations, and give Read more…