Training Options
We currently offer training for medical and genetics professionals and students on providing accurate, up-to-date, and balanced information following a diagnosis of Down syndrome. We have offered live and online presentations to genetic counseling students at Wayne State University, the University of Utah, the University of South Carolina at Columbia, the University of Texas in Houston, and Leadership Education in Neurodevelopmental and Related Disabilities (LEND) trainees at Georgia State University and Louisiana State University. If you are interested in scheduling a training, please contact us.
Resources for Medical Professionals
Free online learning modules for medical professionals from the University of Kentucky’s Human Development Institute:
PHT 201: Improving the Prenatal Diagnosis Experience and Long-Term Patient Outcomes with Accurate, Up-to-Date, and Balanced Information about Genetic Conditions
PHT 204: Brighter Tomorrows: Best Practices for Communicating a Prenatal Diagnosis of Down Syndrome
PHT 205: Brighter Tomorrows: Best Practices for Communicating a Postnatal Diagnosis
PHT 206: Understanding Disability and Best Practices for Communicating a Diagnosis
PHT 207: PCORI Medical Provider Module: Disseminating Patient-Centered Outcomes Research Results about Disabilities to Black and Hispanic Parents
Summary of best practice guidelines for delivering a diagnosis:
Delivering a Prenatal or Postnatal Diagnosis
You can also request a free printed copy of these guidelines from our library of resources.
Additional Training Resources for Medical Providers:
Jack’s Basket Medical Provider Training
This curriculum can improve healthcare provider communication and enhance patient-provider relationships by providing the knowledge, strategies, and communication techniques needed to deliver unexpected news to patients and their families without bias.
This free, self-guided curriculum was created by providers for providers and is for all Medical Learners. It is worth 10 AMA PRA Category 1 Credit(s)™.*