The Down Syndrome Collaborative supports new and expectant parents from pregnancy through age 3 with key partners in the Down syndrome community. In this month’s Down Syndrome Collaborative meeting, Kate and Lily Meredith present on their experience growing up with their older brother, Andy, who has Down syndrome. The Sibling Read more…
In this Medical Outreach Meeting, Brian Skotko, MD, MPP, answers questions and provides insight into Down syndrome care. Brian Skotko’s experience includes: DSC2U (Down Syndrome Clinic to You) is a resource for caregivers and medical providers of individuals with Down syndrome. DSC2U provides customized Down syndrome care plans starting at Read more…
Storytelling session at the Genetic Support Foundation event in 2018 discussing the top 5 things Stephanie Meredith wishes doctors or genetic counselors would have told her when her son, Andy, was diagnosed with Down syndrome back in the year 2000.
For Health Professionals Supporting New and Expectant Parents: For Health Professionals Supporting Patients Across the Lifespan: Other Information to Share:
Listen to Stephanie Thompson from the National Down Syndrome Adoption Network provide an overview of their work. NDSAN has also created a booklet for clinicians to give to families who have a prenatal diagnosis and who are considering not parenting entitled, “A Loving Choice: Adoption as an Option.”
2019 Annual Report Learn about all the work we did in 2019 and get more details about new products and language releases; new grants we received to further help parents and medical providers; new publications; conferences we presented at in 2019; and the numbers of materials we distributed Spoiler alert! We provided printed resources for over half Read more…
To learn more about Jack’s Basket, check out their latest video for WDSD and another video that highlights how their program works: Jack’s Basket is a 501(c)3 nonprofit organization with a mission to celebrate babies born with Down syndrome. They strive to ensure that every new and expectant parent is Read more…
About a year ago the Down Syndrome Association of Wisconsin started an innovative grandparent support group.