Photo of treasure hunt items like a book, camera, magnifying glass, and photos with old time lighting

Let’s go on a treasure hunt: Uncover your state’s best-kept secrets for medical outreach

Watch this video to find state-level partners who can help local disability advocacy organizations engage in medical outreach. Funding, Collaboration, Advertisement, Training, and Support UCEDD/LEND programs: https://www.aucd.org/template/index.cfm Protection and Advocacy Organizations: https://acl.gov/programs/find-your-pa-agency DD Council: https://nacdd.org/councils/ Parent Center: Parent to Parent and Family Voices: https://www.parentcenterhub.org/find-your-center/ DPH: Down Syndrome Information Acts: https://www.lettercase.org/issues/state-laws/ State Read more…

Female middle-aged doctor with a white lab coat sitting at a table with a white pregnant woman wearing a pink shirt and sweater.

Recommendations to Improve the Patient Experience and Avoid Bias When Prenatal Screening/Testing

We are excited to share with you our new manuscript (“Recommendations to improve the patient experience and avoid bias when prenatal screening/testing”) in Disability and Health Journal. Our multidisciplinary team of advisors for the Center for Dignity in Healthcare for People with Disabilities worked for over two years on this article to give recommendations to Read more…

Photo of pregnant Black mother meeting with a doctor

Prenatal Disability Education Summit

On May 13, 2022, the National Center for Prenatal and Postnatal Resources, housed at the UK Human Development Institute hosted the Prenatal Disability Education Summit. This event was sponsored by the Joseph P. Kennedy, Jr. Foundation(JPKF) and brought together national medical, advocacy, bioethics, industry, and policy leaders to collaboratively identify current challenges and potential Read more…