Partners:
Genetic Conditions Consensus Group Representatives:
We are grateful to have representatives from the following organizations who review our materials and provide valuable feedback.
Medical and Academic Organizations
American Academy of Pediatrics
American College of Obstetricians and Gynecologists
American College of Medical Genetics and Genomics
Association of University Centers on Disabilities
National Society of Genetic Counselors
Patient Advocacy Organizations:
11q Research and Resource Foundation
Down Syndrome Diagnosis Network
Foundation for Prader-Willi Research
National Down Syndrome Society
Down Syndrome Education International
Prader-Willi Association of the US
Turner Syndrome Society of the US
Lettercase Review Committee
The Lettercase leadership and staff also meet quarterly with our Lettercase Review Committee, an interdisciplinary group of community advisors who review our progress and offer feedback to inform our goals, strategies, and connections. A few of these advisors have served on the committee for over 12 years because they are so committed to this project!
- Altovise Ewing-Crawford, PhD, LGCG
- Angela M. Trepanier, MS, CGC
- John David Hoppe
- Harold L. Kleinert, EdD
- Judy Thibadeau, RN, MN
- Laura Hercher, MS, CGC
- Leah Smith
- Mitchell Levitz
- Steven M. Eidelman, Joseph P. Kennedy, Jr. Foundation